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Endometriosis warrior, Criminology graduate, Struggling with Infertility and Chronic pain.

Sunday, December 26, 2010

Do I feel empty? Endo Rant Part II



(Courtesy of Google Images)



I am absolutely fed up with the insensitive and stupid things people say to me.  

I don't think I can stand back and be silent one more time.  

I have been doing it for too long.  

So that other people don't have to feel bad.  

This week I had to catch up with some friends and I bravely got dressed and made up for dinner.  

Now I get that some people are inquisitive.  I get that there are some strange questions that people are going to ask you.  In fact sometimes I welcome these inquisitive and strange questions after all I feel that it is my responsibility to advocate for this disease.  

What I don't get is how stupid and ignorant some people are. 

I had someone ask me at dinner - and this was the same woman who asked me after my hysterectomy if I was going to get my period again and would I be able to get pregnant - do I feel empty? 

Do I feel empty?

I asked her what she meant?  Physically, emotionally, spiritually?  

Her answer - well you have nothing left inside you, surely you must feel empty like a big black hole?

Then she asked me if all of my other organs were going to fall into the big black hole I now have.  She meant physically!

Do you honestly believe that a woman is that stupid and that ignorant?  Believe me because I am telling you.  

I swallowed and shrugged off this stupid question and I regret it now.  

I shrugged it off because I wanted to cry and scream and throw the chairs at her and everyone in the restaurant.  I felt like there was an angry beast inside of me about to be unleashed.

I felt dangerous.  I felt out of control.  I felt like I was going to lose it.  

I should have put this person in their place.  I should have done it when she foolishly asked me if I would get a period after my hysterectomy.  

I was given another opportunity to enlighten her on the female body and I didn't do anything about it.  

Why?  

I am tired of fighting.  I am tired of fighting other women and their stupid insensitive comments.  

I am tired of other women with endo making stupid insensitive comments.  

I am tired of them telling other women to have a hysterectomy to solve their endo problems especially when they haven't had one themselves.  

I am tired of women with endo telling me that I shouldn't be in pain since I have had a hysterectomy.  

I am tired of wanting these women to stop being so ignorant and do some research.  Even a simple google search will do.  

I am tired of having to justify my pain not only to ignorant non-endo women but to endo women as well.  

A hysterectomy does NOT cure endometriosis.  It does NOT relieve you of endometriosis pain.  Nothing does.  

All a hysterectomy will do is relieve you of having your period.  That is all.  This could be life saving surgery as it was in my case.  But it should be a last resort.  Last last resort.  

For a woman with endo to suggest this to another woman with endo indicates to me that they don't know anything about this disease.  At all.  

It indicates to me that they are ignorant to the fundamental identifying features of this disease - that there is no cure.  

I don't think that women understand the gravity of this predicament.  

This is not an operation that should be off handedly referred to as a solution.  Especially women who clearly know nothing about this silent and mysterious disease.  

This should not have to be explained to another woman - endo or no endo. 

Do you know what I am tired of most?  I am tired of infertile women trying to conceive telling me they understand.  

They don't.  How could they.  They are trying.  They have tried.  

I can NEVER try.  

We don't share the same infertility status.  We won't ever.  There is no common ground.  

Because the difference is - they can try and I will never be able to try.  I can't even entertain trying.  Ever.  

I know that they mean well and are trying their best to offer words of comfort.  But their trying and my never being able to try is not understanding.  

I am tired of people telling me I can and should adopt.  

Have they not considered that I am an intelligent independent woman and would have considered this option already?  Again this is insulting.  

So from now on I am not going to be silent.  

When someone makes a stupid insensitive comment I am going to enlighten them.  

I am sick of them hurting me with their stupidity and ignorance so I am going to empower them with knowledge.  So that they don't do it again - ever.  

When I said I am tired of fighting.  I only meant today.  For these words I have typed are fighting words.  

I am tired today because I am weak.  I am weak from surgery.  I am weak from crying.  I am weak from not sleeping properly.  I am weak from being thrust into surgical menopause.  

I am weak from feeling so melancholy.  

It feels like every time someone makes a stupid insensitive comment part of me crumbles away.  But no more.  

After all I am That Girl With Endo and I am going to empower myself by empowering other women.  

12 comments:

  1. Oh dear god! Seriously, she seriously asked that? Said that?

    *shakes head*

    I discovered your blog via ICLW this week and have been reading back over your posts and you are ONE INSPIRATIONAL woman!!!!!!!!!!

    You have been through SO much and yet here you are, on the other side, still living, still refusing to give up, having a voice. You should be SO proud!

    I get the Infertile women thing as well. I am infertile [been trying for 11 years, had countless miscarriages] but I think no two infertiles journeys are the same and so to try and say you "understand" what someone else is going through, well I think you can understand some of the feelings associated with infertility but unless you're living the exact same situation, you can't understand fully and to say that you can and that you DO, well it's kind of a slap in the face to the person you're saying it to.

    I cannot even BEGIN to imagine what you've been through, what you're going through, not at all and so I won't try to say that I do but I CAN understand the feelings of never becoming a mother.

    Your honest writing style, has won you a new reader here....

    ~x~

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  2. Thank you Miss Ruby. Yes indeed she seriously said that. It's unbelievable isn't it? I always assume that other women are familiar with their bodies so I become rather astonished when I meet another woman who knows nothing of her body.

    You are indeed correct - 'no two infertile journeys are the same'. I think after reading your story that perhaps I have been spared the pain of 'trying'. I am always trying to 'count my blessings' as my mother would say and perhaps this is one of them? I have been spared all of those painful years of trying and constantly hovering in that trying place.

    I certainly didn't want to undermine another any other infertile journey for I only wanted to highlight the difference. Hopefully my honesty has approached it the best way I could.

    I too have read over your blog and I LOVE it. Thank you for stopping by and writing such a thoughtful comment.

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  3. Oh sweetie, I can’t even understand how someone could dare to think that would be okay to say. I love the FB group you created, the “Christian Endo Warriors”. It reminds me to keep fighting in this battle. And that we have a God who is fighting for us as well.

    I am thinking and praying for you on my drive today.

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  4. We endo warriors do have our weary days, don't we?

    I feel like I've got similar rants to yours about ignorant people, although not on the infertility topic.

    Much love to you, endo sister.

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  5. ugh. I'm so sorry someone actually opened that mouth and let that ignorance spill out. I am glad that it lit your fire though instead of extinguishing your spirit. Stay in touch. i'd live to offer as much support as i can.

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  6. All I can say, is its pretty horrible that other endo women out there feel like they can bully others into believing they need hysterectomys or certain drugs that are horrible for your body... and then also have to explain your pain to them when THEY think it should be gone. I have been through this many times and finally started calling people out on it without being mean or anything and got totally snubbed out. Which is fine, no one needs people in their life who all they give to anyone is negative outlooks when they themselves expect you to be cheery when your in lots of pain.

    I say I agree, dont be silent, spread the word as you see fit for the individual!

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  7. Ignorance about this disease is just running rampant. I hate it and I feel your pain - literally.

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  8. I think what blows my mind about this the most is that a woman could have such a limited understanding of her own anatomy! How does that even happen? How is it even possible?!? And how could she be so stupid.

    I'm sorry friend. I know I have made the empty comment more than once regarding the big H. Not so much in terms of physically, but because I genuinely fear feeling empty emotionally if I allowed things to go that route. It is a sincere fear of mine. But I would never venture to guess how someone else may feel in light of it. I'm just sorry... People are stupid.

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  9. Oh, sweetness. This is so... exactly it. I had my hysterectomy because I honestly couldn't deal with another period. I couldn't stand the bleeding out and death-like feelings I had for the three weeks out of every month.

    And nearly every single person in my life thinks it was the "cure" to my problems, no matter how many times I've said, "There is no cure!"

    I'm praying for you...

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  10. What? That woman said WHAT? You have to be kidding me!!

    Okay, in a perfect world, how would you have liked to respond to her?

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  11. Powerful post, made me cry..
    You're an inspiration. I always shrug off insensitive comments and stupid questions, it probably has more of a long-term negative affect. Setting a person straight then and there would be far more empowering. I'll strive to say what I'm thinking in those situations from now on.

    Girl in Baggy Greens

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